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Genetic Counselor

Real-Life Activities

Real-Life Communication -- Solution

Here are the answers about cystic fibrosis:

  1. What is cystic fibrosis?

    CF is an inherited disease. It affects the body's mucus glands. It is a chronic disease, so it doesn't go into remission. It is progressive and often fatal.

  2. What part of the body does it affect?

    It affects mainly the respiratory and digestive systems in young people. Usually, the sweat glands and reproductive system are also affected.

  3. How common is the disease?

    About 30,000 Americans, 3,000 Canadians and 20,000 Europeans have CF. About 2,500 babies are born each year in the U.S. with CF. Plus, about one in every 20 Americans carries the abnormal gene but doesn't actually have the disease.

  4. What ethnic group(s) does it affect most?

    CF can affect anyone of any race or ethnic group. However, it occurs mostly in whites whose ancestors came from northern Europe.

Genetic counselors need to be excellent communicators. Genetic counselor Elizabeth Hoodfar stresses this point.

"You can't be a genetic counselor without very, very strong communication skills, both written and oral," she says. "I would say that it's the primary qualification that you need."

Genetic counselors explain complex medical information to patients. They also have to speak to large groups at conferences or in classrooms.

"We do a lot of public speaking," Hoodfar says. "Depending on what audience you're talking to, you have to organize your talk so that it interests that particular target population."


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